Epidemiologic Studies

Birth Defects Surveillance

Data obtained from Adverse Pregnancy Outcomes Reporting System (APORS)

The Illinois public dataset is in ASCII format and contains individual records of children reported with adverse pregnancy outcomes among Illinois residents from 1989 onwards. Adverse pregnancy outcomes include birth defects, birth weight < 1500g, fetal death, infant death during newborn hospitalization, serious congenital infections, diagnosed exposure to drugs and certain other serious conditions.

Separate files are available for the state, counties, and regions (Chicago, suburban Cook County, the collar counties and the remainder of Illinois). The collar counties are DuPage, Kane, Lake, McHenry and Will. Confidentiality is maintained by aggregating data within individual records into categories, and limiting the number of variables available on the dataset.

The Illinois dataset contains birth year, gender, race, ethnicity, gestational age, maternal age and indicators of whether the child had a birth defect, a neural tube defect, and/or Down syndrome.

The regional dataset contains birth year (within a three-year interval), mother’s region of residence at delivery, gender, race, ethnicity, gestational age, maternal age and indicators of whether the child had a birth defect, a neural tube defect, and/or Down syndrome.

The county dataset contains birth year (within a five-year interval), mother’s county of residence at delivery, race, ethnicity, gestational age, maternal age and an indicator of whether the child had a birth defect.

The README.TXT file provides record layouts, instructions, and general information for each data file.

APORS is the most complete source of data on adverse pregnancy outcomes that exists in Illinois. All Illinois hospitals are mandated to report infants born to Illinois women. (Perinatal centers in St. Louis, Mo., voluntarily participate.)

The following facts should be considered when interpreting APORS data.

Please reference the source of these data in any published document as follows: Illinois Department of Public Health, Adverse Pregnancy Outcome Reporting System public data set, March 2005.

If you have questions about the dataset please contact:

Illinois Department of Public Health
Division of Epidemiologic Studies
605 West Jefferson Street
Springfield, IL 62761
phone (217) 785-7129
e-mail JANE.FORNOFF@illinois.gov

Download the readme.txt file and one or more data files. The README.TXT is an ASCII text file and can be read from DOS or any word processing software. The .EXE files are self inflating and contain the text files.

README.TXT

IL04.EXE (320KB)

ILcty03.EXE (384KB)

ILreg03.EXE (352KB)

 

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