Illinois Department of Public Health Division of Epidemiologic Studies Illinois State Cancer Registry User Manual Cancer Incidence Public Dataset (19th edition), released April 2012, data as of November 2011. Illinois data IL8609.dat County data CNTY9009.dat ZIP code data ZPCD9009.dat Data Use Agreement By using these data, you signify your agreement to comply with the following statutorily based requirements. The Illinois Health and Hazardous Substances Registry Act (410 ILCS 525/12) provides data collected by the Illinois State Cancer Registry be made available to the public, however, the identification or contact of individuals is prohibited. In an effort to exclude identifying information on individual patients, the data (e.g. age, race, Hispanic ethnicity, year of diagnosis and type of cancer) have been aggregated into categories within individual records, the number of which depends on the size of the geographic area. These data are provided as a public service for the purpose of statistical reporting and analysis only. There should be no attempt to learn the identity of any person included in these data. If the identity of any person is discovered inadvertently, no disclosure or other use of the identity will be made. Uses of these data do not constitute an endorsement of the user's opinion or conclusions by the Department and none should be inferred. Technical Notes The Illinois public dataset is in ASCII format and contains sanitized individual records of cancer incidence among Illinois residents diagnosed from 1986 through 2009. Separate files are available for the state, counties, and ZIP code areas. Confidentiality is maintained by aggregating data within individual records into categories, the number of which depends on the size of the geographic area. Individual year of diagnosis is available for the Illinois data files, however for the county and ZIP code files, the diagnosis year is a five-year aggregate (1990-1994, 1995-1999, 2000-2004 and 2005-2009). The following article describes the method used to measure uniqueness of the files. Howe HL, Lake AJ, Shen T. Method to assess identifiability in electronic data files. Am J epidemiol 2006; doi: 10.1093/aje/kwk049. The files include incidence data for invasive cancers only with the exception of cancer of the bladder. Carcinoma insitu of the breast is provided in a separate category. Non-melanoma skin cancers, cases reported with unknown or "other" sex, and cases with an unknown age are omitted. The ASCII data files are NOT incorporated into a software program and therefore require the use of other statistical or database software packages for data analysis (spreadsheet programs such as Excel, Lotus, or QPRO should not be used as the number of records in each file is in excess of 1,100,000). Identification of cancer cases in the Illinois State Cancer Registry (ISCR) is dependent upon reporting by hospitals, free-standing clinics, radiation treatment facilities, laboratories and physician offices as mandated by state law. In addition, ISCR has agreements with other central cancer registries in Arkansas, California, Florida, Indiana, Iowa, Kentucky, Michigan, Minnesota (Mayo Clinic, through October 2005), Missouri, Mississippi (through 2004), North Carolina, Washington, Wisconsin, and Wyoming (through February 2008), to exchange cancer data. Completeness of out-of-state reporting depends upon the years of operation of these other central registries, the extent of their identification of out-of-state residents, and their standards of quality (see Cancer in North America: 2004-2008, Volume Two http://www.naaccr.org/DataandPublications/CINAPubs.aspx). A death certificate clearance process involving follow-back of cancer deaths in an effort to identify missed cases has served as an additional means of case identification since August 1993. The following completeness of case ascertainment for each year of the Illinois data and for each five-year group of the county and ZIP code data was estimated using the standard developed by the North American Association of Central Cancer Registries (NAACCR) and adopted by the National Program for Cancer Registries. This method uses a sex- and site-specific incidence-to-mortality ratio for whites in order to compare the number of reported cases to the number of expected cases. This method was used for data from 1986-1994. A detailed description of the orignal method is in the November 1996 issue of the NAACCR Newsletter and can be located on-line http://www.naaccr.org/index.asp?Col_SectionKey=6&Col_ContentID=9 DxYr Completeness DxYrGrp Completeness 1986 88% 1987 90% 1988 87% 1989 88% 1990 89% 1990-94 91% 1991 88% 1992 91% 1993 92% 1994 97% For data from 1995-2009 the revised method was used. A detailed description of the revised method is in the Winter 2001 edition Of the NAACCR Narrative and can be located on-line http://www.naaccr.org/index.asp?Col_SectionKey=6&Col_ContentID=9 1995 100% 1995-99 100% 1996 100% 1997 100% 1998 100% 1999 100% 2000 100% 2000-04 100% 2001 100% 2002 100% 2003 100% 2004 100% 2005 100% 2005-09 100% 2006 100% 2007 100% 2008 100% 2009 100% In addition to the estimates for completeness of case ascertainment, the North American Association of Central Cancer Registries (NAACCR) has developed a certification process that reviews registry data for completeness, accuracy, and timeliness of reporting. The criteria for silver and gold certification can be found on the NAACCR web site http://www.naaccr.org/Certification/index.html As of April 2012, ISCR data met the criteria for gold certification for diagnosis years 1996, 1997, 1998, 1999,2000,2001,2002,2003,2004,2005,2006,2007 and 2008. [NOTE: diagnosis year 1995 now meets gold criteria] Completeness* Pass DCO** Unresolved Missing Data Fields (As of 11-11) EDITS (%) Duplicate*** Sex Age County Race (%) (%) (%) (%) (%) (%) 1986 88 ~ ~ ~ 0.0 0.0 0.0 0.2 1987 90 ~ ~ ~ 0.0 0.0 0.0 0.2 1988 87 ~ ~ 0.04 0.0 0.0 0.0 0.3 1989 88 ~ ~ 0.04 0.0 0.0 0.0 0.3 1990 89 100 ~ 0.04 0.0 0.0 0.0 0.3 1991 88 100 ~ 0.04 0.0 0.0 0.0 0.5 1992 91 100 ~ 0.04 0.0 0.0 0.0 0.2 1993 92 100 2.2 0.04 0.0 0.0 0.0 0.2 1994 97 100 6.1 0.06 0.0 0.0 0.0 0.3 1995 100 100 2.7 0.03 0.0 0.0 0.0 0.4 1996 100 100 1.8 0.02 0.0 0.0 0.0 0.5 1997 100 100 1.8 0.09 0.0 0.0 0.0 0.7 1998 100 100 1.5 0.03 0.0 0.0 0.0 1.0 1999 100 100 1.8 0.02 0.0 0.0 0.0 1.0 2000 100 100 2.4 0.03 0.0 0.0 0.0 1.0 2001 100 100 2.4 0.00 0.0 0.0 0.0 0.9 2002 100 100 2.6 0.00 0.0 0.0 0.0 1.1 2003 100 100 1.5 0.02 0.0 0.0 0.0 1.2 2004 100 100 1.7 0.01 0.0 0.0 0.0 1.1 2005 100 100 1.9 0.00 0.0 0.0 0.0 1.3 2006 100 100 2.0 0.00 0.0 0.0 0.0 0.9 2007 100 100 1.2 0.00 0.0 0.0 0.0 1.0 2008 100 100 1.7 0.07 0.0 0.0 0.0 1.0 2009 100 100 1.7 0.03 0.0 0.0 0.0 1.3 ~ not applicable * For data prior to 1995, the NAACCR’s completeness estimating algorithm (version 1) was used. For data on or after 1995, the NAACCR’s completeness estimating algorithm (version 2) was used. ** DCO follow-back not started until end of 1993 reporting year *** NAACCR’s duplicate protocol was run for each year at the time of data submission for registry certification. Cancer cases are reported continuously to central registries in accordance with statutory reporting requirements. Cancer registries continue to revise and update data on the basis of new information. For this reason, an updated version of previous years data are published each year(e.g. data for diagnosis year 2008 reported with this version of the public data set may differ from the last version). Users of Illinois cancer data should be mindful of the "data as of" date. CANCER CODING CHANGES DURING 2001-2006 Cancer Incidence. Several definitional changes occurred in some histologies and behaviors in ICD-O-3 that affected the inclusion and exclusion of reportable cancers diagnosed beginning in 2001. The changes predominately affected leukemias, lymphomas, and cancer of the ovary. One category of change between ICD-O-2 and ICD-O-3 is the manner in which leukemias and lymphomas are classified and coded. Although conversion of histology codes from ICD-O-2 to ICD-O-3 for cases diagnosed prior to 2001 will help to minimize these differences, some minor differences may still exist, particularly with respect to some relatively rare lymphocytic cancers that can be coded to either leukemia or lymphoma. Starting with ICD-O-3, several myelodysplastic diseases and syndromes are considered malignant, and therefore are now reportable for cases diagnosed in 2001 and later and are included in these data. Leukemias that represent a disease progression from one of the myelodysplastic diseases or syndromes diagnosed in 2001 and forward are no longer reportable. For pediatric cancers, differences in incidence rates may be due to changes between the second and third edition of the International Classification of Childhood Cancers (ICCC). Two changes in the ICCC-3 classification are main contributors to this change. 1) Burkitt lymphoma and unspecified lymphoma, which were separated from non-Hodgkin lymphoma previously are combined with non-Hodgkin lymphoma; 2) Some lymphomas, which were grouped in the miscellaneous lymphoreticular neoplasms previously, are now included in the non-Hodgkin lymphoma category. Pilocytic astrocytoma is considered to have uncertain behavior in the published version of ICD-O-3, but is reportable as a malignant cancer in North America. Including the childhood astrocytomas in the category of malignant brain tumors may introduce differences between childhood brain cancer rates in North America compared to other areas of the world that may not include these tumors as malignant. In addition, mesothelioma and Kaposi sarcoma cases are reported as separate categories. This change has little or no impact on most rates for specific cancers. Please reference the source of these data in any published document as follows: Illinois Department of Public Health, Illinois State Cancer Registry, public data set v19, 1986-2009, data as of November 2011. If you have questions about the dataset, please contact Melinda Lehnherr Illinois Department of Public Health Division of Epidemiologic Studies 535 West Jefferson Street, 3rd FL Springfield, IL 62761 phone (217) 785-1873 e-mail melinda.lehnherr@illinois.gov FILE LAYOUT for state file IL8609.DAT Record Format (all fields are numeric) Data Field Positions Length sex code 1-1 1 diagnosis year 2-5 4 method of diagnosis code 6-6 1 birth place code 7-9 3 morphology 4-digit code 10-13 4 behavior code 14-14 1 report source 15-15 1 pediatric group level 2 16-18 3 SEER groups 19-23 5 pediatric group level 1 24-25 2 5-yr. age at diagnosis group code 26-27 2 race group code 28-28 1 stage of disease code 29-29 1 Hispanic group 30-30 1 CODES FOR DATA FIELDS sex code 1 male 2 female diagnosis year 1986 1987 1988 1989 1990 1991 1992 1993 1994 1995 1996 1997 1998 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008 2009 method of diagnosis 1 positive histology 2 positive exfoliative cytology, no positive histology 3 positive histology & positive immunophenotyping AND/OR positive genetic studies 4 positive microscopic confirmation, method not speccified 5 positive laboratory test or marker study 6 direct visualization without microscopic confirmation 7 radiography & other imaging techniques without microscopic confirmation 8 clinical diagnosis only (other than 5, 6 or 7) 9 unknown whether or not microscopically confirmed birth place code 0 United States 1 New England and New Jersey 2 Maine 3 New Hampshire 4 Vermont 5 Massachusetts 6 Rhode Island 7 Connecticut 8 New Jersey 10 North Mid-Atlantic States 11 New York 14 Pennsylvania 17 Delaware 20 South Mid-Atlantic States 21 Maryland 22 District of Columbia, DC 23 Virginia 24 West Virginia 25 North Carolina 26 South Carolina 30 Southeastern States 31 Tennessee 33 Georgia USA 35 Florida 37 Alabama 39 Mississippi 40 North Central States 41 Michigan 43 Ohio 45 Indiana 47 Kentucky 50 Northern Midwest States 51 Wisconsin 52 Minnesota 53 Iowa 54 North Dakota 55 South Dakota 56 Montana 60 Central Midwest States 61 Illinois 63 Missouri 65 Kansas 67 Nebraska 70 Southern Midwest States 71 Arkansas 73 Louisiana 75 Oklahoma 77 Texas 80 Mountain States 81 Idaho 82 Wyoming 83 Colorado 84 Utah 85 Nevada 86 New Mexico 87 Arizona 90 Pacific Coast States 91 Alaska 93 Washington 95 Oregan 97 California 99 Hawaii 100 Atlantic/Caribbean area, US possessions 101 Puerto Rico 102 US Virgin Islands 109 Atlantic/Caribbean area, other US possessions 110 Canal Zone 120 Pacific Area, US Possessions 121 American Samoa 122 Kiribati (Canton and Enderbury Islands, Gilbert Islands etc) 123 Micronesia (Federated States of Caroline Islands, Trust Territory of Pac. Islands) 124 Cook Islands (New Zealand) 125 Tuvalu (Ellice Islands) 126 Guam 127 Johnston Atoll 129 Mariana Islands 131 Marshall Islands 132 Midway Islands 133 Nampo-Shoto Islands 134 Ryukyu Islands 135 Swan Islands 136 Tokelau Islands 137 Wake Islands 139 Palau (Trust Territory of Pacific Islands) 210 Greenland 220 Canada 221 Labrador, Maritime Province Canada, New Brunswick etc 222 Quebec 223 Ontario 224 Alberta, Manitoba, Prairie Provinces, Saskatchewan 225 Northwest Territories - Canada, Yukon Territory 226 British Columbia 227 Nunavat (Territory of Canada) 230 Mexico 240 North American Islands 241 Cuba 242 Haiti 243 Dominican Republic 244 Jamaica 245 Other Caribbean Islands Anguilla, Antigua,Caribbean(oth),Barbados,Brit Virgin,Cayman etc 246 Bermuda 247 Bahamas 249 Saint Pierre, Miquelon 250 Central America 251 Guatemala 252 Belize, Brit Honduras 253 Honduras 254 El Salvador 255 Nicaragua 256 Costa Rica 257 Panama 260 North America, NOS 265 Latin America, NOS 300 South America, NOS 311 Colombia 321 Venezuela 331 British Guiana, Guyana 332 Dutch Guiana, Netherlands Guiana, Suriname 333 French Guiana 341 Brazil 345 Ecuador, Galapagos Is 351 Peru 355 Bolivia 361 Chile 365 Argentina 371 Paraguay 375 Uruguay 380 South American Islands 381 Falkland Islands 400 United Kingdom 401 Isle of Man, England, Channel Islands (Brit), Guernsey, Jersey 402 Wales 403 Scotland, Shetland Is, Orkney Is 404 Northern Ireland, Ulster 410 Eire, Ireland 420 Scandinavia, Lapland, NOS 421 Iceland 423 Norway, Svalbard 425 Denmark, Faroe (Faeroe) Islands 427 Sweden 429 Finland 430 Germanic Countries 431 Bavaria, Germany (East and West) 432 Holland, Netherlands 433 Belgium 434 Luxembourg 435 Switzerland 436 Austria 437 Liechtenstein 440 Romance-language Countries 441 Corsica, France, Monaco 443 Spain, Andorra, Balearic Is,Canary Is 445 Portugal, Madeira Is, Cape Verde Is, Azores 447 Italy, San Marino, Sicily, Sardinia, Vatican City 449 Romania 450 Slavic countries 451 Poland 452 Bohemia, Chechoslovakia, Moravia, Slovakia, Czech Rep, Slovak Rep 453 Bosnia-Herzogovina, Croatia, Macedonia, Montenegro, Yugoslavia, Serbia, Slovenia, Slavonia 454 Bulgaria 455 Russia, Russian Federation (former USSR) 456 Bessarabia, Moldavia, Ukraine 457 Belarus (Byelorussian SSR) (White Russia) 458 Estonia 459 Latvia 461 Lithuania 463 Baltic Republic, NOS (Baltic States, NOS) 470 Europe, other mainland 471 Crete, Greece 475 Hungary 481 Albania 485 Gibraltar 490 Other Mediterranean Islands 491 Malta 495 Cyprus 499 Europe, NOS (Central, Eastern, Northern, Southern, Western) 500 Africa, NOS, Central Africa, NOS, Equatorial Africa, NOS 510 North Africa, NOS 511 Morocco 513 Algeria 515 Tunisia 517 Libya, Tripoli, Cyrenaica, Tripolitania 519 Egypt, United Arab Republic 520 Sudanese Countries, Burkina Faso, Chad, mali, Mauritania, Niger, Sudan, Western Sahara 530 West Africa, French Western Africa, NOS 531 Nigeria 539 Other Western African countries,Cameroon,FrenchCongo,Ghana,Ginea,IvoryCoast,Liberia,SierraLe 540 South Africa 541 Zaire (Belgian Congo, Congo-Leopoldville, Congo Kinshasa) 543 Angola (Sao Tome, Principe, Cabinda) 545 Republic South Africa, Botswana, Lesotho, Namibia, Swaziland, Union of South Africa. 547 Rhodesia, Southern Rhodesia, Zimbabwe 549 Zambia (Northern Rhodesia) 551 Malawi, Nyasaland 553 Mozambique 555 Madagascar, Malgasy Republic 570 East Africa 571 Tanzanyika, Zanzibar, Tanzania, Tanzanyika 573 Uganda 575 Kenya 577 Ruanda, Rwanda (Ruanda) 579 Burundi (Urundi) 580 African Costal Islands, Comoros, mauritius Mayotte, Reunion, St. Helena, Seychelles 581 Somalia, Somaliland, Somali Republic 583 Djibouti (French Territory of the Afars and Issas, French Somaliland) 585 Ethiopia, Abyssinia, Eritrea 600 Asia, NOS 610 Near-East Mesopotamia, NOS 611 TurkeyAnatolia, Armenia, Asia Minor, NOS 620 Asian Arab countries, Iraq-Saudi Arabia Neutral Zone 621 Syria 623 Lebanon 625 Jordan (Trans-Jordan former Arab palestine) 627 Iraq 629 Saudi Arabia,ArabianPen.,Bahrain,Kuwait,Muscat,Oman,S. Yemen 631 Israel and former Jewish Palestine, Gaza, Palestine ,Palestine NOS, West Bank 633 Armenia, Azerbaijan (Nagorno-Karabakh),Azerbaidzhan, Georgia(USSR) 634 Kazakhstan, Kyrgystan, Tajikistan, Turkmenistan, Uzbekistan 637 Iran, Persia 638 Afghanistan 639 Pakistan, West Pakistan 640 Mid-East Asia, Maldives 641 India, Andaman Is 643 Nepal, Bhutan, Sikkim 645 East Pakistan, Bangladesh 647 Ceylon, Sri Lanka 649 Burma, Myanmar 650 South-East Asia, 651 Siam, Thailand 660 Indochina 661 Laos 663 Cambodia, Kampuchea 665 Vietnam, Tonkin, Cochin China, Annam 671 Singapore, North Borneo, Malaysia, Malay Pen., Brunei 673 Indonesia, Java, Dutch E.Indies, New Guinea(exc.Australia&NE Sumatra) 675 Philippine Islands 680 Asia, East 681 China NOS 682 People's Republic of China 683 Hong Kong 684 Rep of China, Formosa, Taiwan 685 Tibet 686 Macao (Macau) 691 Mongolia 693 Japan 695 Korea (North, South) 711 Australia, Aus.NewGuinea,Cartier Is, Norfolk, Papau, Cocos (Keeling) Is 715 New Zealand, Niue 720 Pacific Islands, Oceania NOS, Polynesia, NOS 721 Melanesian Islands, Fiji,Futuna,New Hebrides,Solomon Is,Wallis,Vanatu 723 Micronesian Islands, Christmas Island, Nauru 725 Fr Polynesia,NewCaldonia,Pitcairn,Samoa(west),Tonga,Polynesian Is, Western Samoa 750 Antarctica 998 Not United States, NOS 999 Unknown morphology (4-digit) NOTE:Although cases diagnosed in 1986 and 2000 were reported with The International Classification of Diseases for Oncology version 2 (ICD-O-2) codes2, and cases diagnosed 2001-2007, were reported with version 3 (ICD-O-3) codes3, all cases were converted to version 3 codes and grouped according to sites group definitions established by the SEER program of the National Cancer Institute (NCI) and also used by NAACCR. These standardized classification schemes allow direct comparisons of Illinois data with international, national and state publications. Kaposi sarcoma and mesothelioma are classified as separate site groups. This change has a slight impact on cancer incidence rates for a few specific cancers, compared to using the previous site grouping method. ICD-O-3 For specific codes see: Fritz A, Percy C, Jack A, Shanmugaratnam K, Sobin L, Parkin D, Whelan S. International Classification of Diseases for Oncology,3rd ed. Geneva: World Health Organization; 2000. behavior code (5th digit of morphology code) 2 in situ 3 malignant Report Source 1 hospital or clinic 2 radiation treatment centers/medical oncology centers 3 laboratory only 4 physician's office 5 nursing home or hospice 6 autopsy only 7 death certificate only 8 other hospital out-patient units/surgery Pediatric codes -level 2 (ICCC ICD-O-3) NOTE:The following article describes the current method used to group pediatric cancer: Steliarova-Foucher E, Stiller C, Lacour B, Kaatsch P. International Classification of Chicldhood Cancer, Third Edition. Cancer. 2005;103:1457-67 11 = I(a) Lymphoid leukemias 12 = I(b) Acute myeloid leukemias 13 = I(c) Chronic myeloproliferative diseases 14 = I(d) Myelodysplastic syndrome and other myeloproliferative diseases 15 = I(e) Unspecified and other specified leukemias 21 = II(a) Hodgkin lymphomas 22 = II(b) Non-Hodgkin lymphomas (except Burkitt lymphoma) 23 = II(c) Burkitt lymphoma 24 = II(d) Miscellaneous lymphoreticular neoplasms 25 = II(e) Unspecified lymphomas 31 = III(a) Ependymomas and choroid plexus tumor 32 = III(b) Astrocytomas 33 = III(c) Intracranial and intraspinal embryonal tumors 34 = III(d) Other gliomas 35 = III(e) Other specified intracranial and intraspinal neoplasms 36 = III(f) Unspecified intracranial and intraspinal neoplasms 41 = IV(a) Neuroblastoma and ganglioneuroblastoma 42 = IV(b) Other peripheral nervous cell tumors 50 = V Retinoblastoma 61 = VI(a) Nephroblastoma and other nonepithelial renal tumors 62 = VI(b) Renal carcinomas 63 = VI(c) Unspecified malignant renal tumors 71 = VII(a) Hepatoblastoma 72 = VII(b) Hepatic carcinomas 73 = VII(c) Unspecified malignant hepatic tumors 81 = VIII(a) Osteosarcomas 82 = VIII(b) Chondrosarcomas 83 = VIII(c) Ewing tumor and related sarcomas of bone 84 = VIII(d) Other specified malignant bone tumors 85 = VIII(e) Unspecified malignant bone tumors 91 = IX(a) Rhabdomyosarcomas 92 = IX(b) Fibrosarcomas, peripheral nerve sheath tumors, and other fibrous neoplasms 93 = IX(c) Kaposi sarcoma 94 = IX(d) Other specified soft tissue sarcomas 95 = IX(e) Unspecified soft tissue sarcomas 101 = X(a) Intracranial and intraspinal germ cell tumors 102 = X(b) Malignant extracranial and extragonadal germ cell tumors 103 = X(c) Malignant gonadal germ cell tumors 104 = X(d) Gonadal carcinomas 105 = X(e) Other and unspecified malignant gonadal tumors 111 = XI(a) Adrenocortical carcinomas 112 = XI(b) Thyroid carcinomas 113 = XI(c) Nasopharyngeal carcinomas 114 = XI(d) Malignant melanomas 115 = XI(e) Skin carcinomas 116 = XI(f) Other and unspecified carcinomas 121 = XII(a) Other specified malignant tumors 122 = XII(b) Other unspecified malignant tumors 253 = pediatric case (aged 0-19) not classified in ICCC3 998 = not pediatric case (age > 19) SEER groups The recode, primary site code, and morphology codes used to categorize cancer incidence into the following SEER groups can be found on the SEER website http://seer.cancer.gov/siterecode/icdo3_d01272003/ 20010 lip 20020 tongue 20030 salivary gland 20040 floor of mouth 20050 gum & other mouth 20060 nasopharynx 20070 tonsil 20080 oropharynx 20090 hypopharynx 20100 other oral cavity & pharynx 21010 esophagus 21020 stomach 21030 small intestine 21041 cecum 21042 appendix 21043 ascending colon 21044 hepatic flexure 21045 transverse colon 21046 splenic flexure 21047 descending colon 21048 sigmoid colon 21049 large intestine NOS 21051 rectosigmoid junction 21052 rectum 21060 anus, anal canal, anorectum 21071 liver 21072 intrahepatic bile duct 21080 gallbladder 21090 other biliary 21100 pancreas 21110 retroperitoneum 21120 peritoneum, omentum, mesentery 21130 other digestive organs 22010 nose, nasal cavity, middle ear 22020 larynx 22030 lung & bronchus 22050 pleura 22060 trachea, mediastinum, other respiratory organs 23000 bones & joints 24000 soft tissue including heart 25010 melanoma of skin 25020 other non-epithelial skin 26000 breast 27010 cervix uteri 27020 corpus uteri 27030 uterus NOS 27040 ovary 27050 vagina 27060 vulva 27070 other female genital organs 28010 prostate 28020 testis 28030 penis 28040 other male genital organs 29010 urinary bladder 29020 kidney & renal pelvis 29030 ureter 29040 other urinary organs 30000 eye & orbit 31010 brain 31040 cranial nerves other nervous system 32010 thyroid 32020 other endocrine including thymus 33011 hodgkin lymphoma - nodal 33012 hodgkin lymphoma - extranodal 33041 non-hodgkin lymphoma - nodal 33042 non-hodgkin lymphoma - extranodal 34000 myeloma 35011 acute lymphocytic leukemia 35012 chronic lymphocytic leukemia 35013 other lymphocytic leukemia 35021 acute myeloid leukemia 35022 chronic myeloid leukemia 35023 other myeloid/monocytic leukemia 35031 acute monocytic leukemia 35041 other acute leukemia 35043 aleukemic, subleukemic & NOS 36010 mesothelioma 36020 kaposi sarcoma 37000 miscellaneous Pediatric codes Level 1 (ICCC ICD-0-3) 1 = I Leukemias, myeloproliferative diseases, and mylodysplastic diseases 2 = II Lymphomas and reticuloendothelial neoplasms 3 = III Central nervous system and miscellaneous intracranial and intraspinal neoplasms 4 = IV Neuroblastoma and other peripheral nervous cell tumors 5 = V Retinoblastoma 6 = VI Renal tumors 7 = VII Hepatic tumors 8 = VIII Malignant bone tumors 9 = IX Soft tissue and other extraosseous sarcomas 10 = X Germ cell tumors, trophoblastic tumors, and neoplasms of gonads 11 = XI Other malignant epithelial neoplasms and malignant melanomas 12 = XII Other and unspecified malignant neoplasms 25 = pediatric case (aged 0-19) not classified by ICCC3 98 = not pediatric case (age > 19) 5-yr. age at diagnosis groups 0 < 1 1 1-4 2 5-9 3 10-14 4 15-19 5 20-24 6 25-29 7 30-34 8 35-39 9 40-44 10 45-49 11 50-54 12 55-59 13 60-64 14 65-69 15 70-74 16 75-79 17 80-84 18 85 + race code 1 white 2 black 3 other* 9 unknown * other race includes Asian-American, Pacific Islanders, American Indians, Alaska Natives, and all other races. In order to improve the quality of cancer surveillance data on American Indians the race has been enhanced with a linkage to the Indian Health Services patient registration database. This linkage identifies cancer cases among American Indians who were misclassified as non-Indians in the registry database. stage of disease code 0 in situ 1 localized 2 regional 3 distant 9 unknown, unstaged, or unspecified Hispanic code 0 non-Hispanic (incl unk) 1 Hispanic* 9 Hispanic data not available for diagnosis years 1986-1989 *Hispanic ethnicity was enhanced according to the NAACCR Hispanic identification algorithm (NHIA). NHIA is a generally reliable method to enhance the ethnic identification of the Latino population in the United States. Howe HL. Evaluation of NHIA Submission for 1997-2001. Springfield, Ill.: North American Association of Central Cancer Registries, October 2004. Schenke N and Gentleman JF On judging the significance of differences by examining the overlap between confidence intervals. The American Statistician 2001;55:182-186. FILE LAYOUT for county file CNTY9009.DAT Record Format (all fields are numeric) Data Field Positions Length sex code 1-1 1 county at diagnosis 2-4 3 report source 5-5 1 cancer site groups 6-7 2 age at diagnosis group code 8-8 1 race group code 9-9 1 Hispanic code 10-10 1 stage of disease 11-11 1 diagnosis year group 12-19 8 CODES FOR DATA FIELDS sex code 1 male 2 female county at diagnosis code race availability 1 Adams all race only 3 Alexander all race only 5 Bond all race only 7 Boone all race only 9 Brown all race only 11 Bureau all race only 13 Calhoun all race only 15 Carroll all race only 17 Cass all race only 19 Champaign all race, white, black 21 Christian all race only 23 Clark all race only 25 Clay all race only 27 Clinton all race only 29 Coles all race only 31 Cook all race, white, black, other (Hispanic/non-Hispanic) 33 Crawford all race only 35 Cumberland all race only 37 DeKalb all race only 39 DeWitt all race only 41 Douglas all race only 43 DuPage all race, white, black, other (Hispanic/non-Hispanic) 45 Edgar all race only 47 Edwards all race only 49 Effingham all race only 51 Fayette all race only 53 Ford all race only 55 Franklin all race only 57 Fulton all race only 59 Gallatin all race only 61 Greene all race only 63 Grundy all race only 65 Hamilton all race only 67 Hancock all race only 69 Hardin all race only 71 Henderson all race only 73 Henry all race only 75 Iraquois all race only 77 Jackson all race only 79 Jasper all race only 81 Jefferson all race only 83 Jersey all race only 85 JoDaviess all race only 87 Johnson all race only 89 Kane all race, white, black (Hispanic/non-Hispanic) 91 Kankakee all race, white, black 93 Kendall all race only 95 Knox all race only 97 Lake all race, white, black, other (Hispanic/non-Hispanic) 99 LaSalle all race only 101 Lawrence all race only 103 Lee all race only 105 Livingston all race only 107 Logan all race only 109 McDonough all race only 111 McHenry all race only 113 McLean all race only 115 Macon all race, white, black 117 Macoupin all race only 119 Madison all race, white, black 121 Marion all race only 123 Marshall all race only 125 Mason all race only 127 Massac all race only 129 Menard all race only 131 Mercer all race only 133 Monroe all race only 135 Montgomery all race only 137 Morgan all race only 139 Moultrie all race only 141 Ogle all race only 143 Peoria all race, white, black 145 Perry all race only 147 Piatt all race only 149 Pike all race only 151 Pope all race only 153 Pulaski all race only 155 Putnam all race only 157 Randolph all race only 159 Richland all race only 161 Rock Isand all race, white, black 163 St Clair all race, white, black 165 Saline all race only 167 Sangamon all race, white, black 169 Schuyler all race only 171 Scott all race only 173 Shelby all race only 175 Stark all race only 177 Stephenson all race only 179 Tazewll all race only 181 Union all race only 183 Vermilion all race, white, black 185 Wabash all race only 187 Warren all race only 189 Washington all race only 191 Wayne all race only 193 White all race only 195 Whiteside all race only 197 Will all race, white, black (Hispanic/non-Hispanic) 199 Williamson all race only 201 Winnebago all race, white, black 203 Woodford all race only report source 1 hospital or clinic 2 radiation treatment centers/medical oncology centers 3 laboratory only 4 physician's office 5 nursing home or hospice 6 autopsy only 7 death certificate only 8 other hospital out-patient units/surgery cancer site group (based on SEER group codes) 1 oral cavity & pharnyx (20010-20100) 2 esophagus (21010) 3 stomach (21020) 4 colorectal (21041-21052) 5 liver (21071) 6 pancreas (21100) 7 lung & bronchus (22030) 8 bone (23000) 9 melanomas (25010) 10 breast-invasive only (26000 behavior code 3) 11 cervix (27010) 12 uterus (27020-27030) 13 ovary (27040) 14 prostate (28010) 15 testis (28020) 16 bladder (29010) 17 kidney (29020) 18 nervous system (31010-31040) 19 Hodgkin's lymphomas (33011-33012) 20 non-Hodgkin's lymphomas (33041-33042) 21 myelomas (34000) 22 leukemias (35011-35043) 23 all other sites (21030,21060,21072,21080,21090,21110, 21120,21130,22010,22020,22050,22060, 24000,25020,27050,27060,27070,28030, 28040,29030,29040,30000,32010,32020, 36010,36020,37000) 24 breast-insitu only (26000 behvior code 2) age at diagnosis group code 1 < 5 2 5-14 3 15-34 4 35-44 5 45-54 6 55-64 7 65-74 8 75 + race code 1 white 2 black 3 other* 9 unknown or race suppressed * other race includes Asian-American, Pacific Islanders, American Indians, Alaska Natives, and all other races. In order to improve the quality of cancer surveillance data on American Indians the race has been enhanced with a linkage to the Indian Health Services patient registration database. This linkage identifies cancer cases among American Indians who were misclassified as non-Indians in the registry database. Note: Data for white residents, black residents and residents of all other races, are not available for every county (see list of counties above). Fifteen counties have sufficiently large black populations and three counties had sufficiently large other populations to allow meaningful statistics for the race group. For the remaining counties, race data are suppressed, therefore, you must use the state file to obtain a rate by race for Illinois. Hispanic codes 1 Hispanic* 2 non-Hispanic (incl unk for appropriate counties) 9 Hispanic data suppressed NOTE: Five counties have sufficiently large Hispanic populations (see list of counties above) to allow meaningful statistics for the ethnicity group. For the remaining counties, Hispanic data are suppressed, therefore, you must use the state file to obtain a rate by Hispanic ethnicity for Illinois *Hispanic ethnicity was enhanced according to the NAACCR Hispanic identification algorithm (NHIA). NHIA is a generally reliable method to enhance the ethnic identification of the Latino population in the United States. Howe HL. Evaluation of NHIA Submission for 1997-2001. Springfield, Ill.: North American Association of Central Cancer Registries, October 2004. Schenke N and Gentleman JF On judging the significance of differences by examining the overlap between confidence intervals. The American Statistician 2001;55:182-186. NOTE: As noted above, some data for race and Hispanic ethnicity in the county file have been supressed. Therefore to compare county race or ethnicity data with IL you will need to obtain the state data from the IL8607 file. summary stage of disease code 0 in situ 1 localized 2 regional 3 distant metastases/systemic disease 9 unknown, unstaged, or unspecified diagnosis year group (5yr groups) 19901994 diagnosed between 1990 and 1994 19951999 diagnosed between 1995 and 1999 20002004 diagnosed between 2000 and 2004 20052009 diagnosed between 2005 and 2009 FILE LAYOUT for ZIP code file ZPCD9009.DAT Record Format (Longitude and latitude to the centroid of the ZIP code are character fields. All other fields are numeric) Data Field Positions Length ZIP code at diagnosis 1-5 5 sex code 6-6 1 cancer site groups 7-8 2 age at diagnosis group code 9-9 1 stage of disease 10-10 1 diagnosis year group 11-18 8 latitude to the CENTROID of the ZIP code 19-28 10 longitude to the CENTROID of the ZIP code 29-38 10 CODES FOR DATA FIELDS ZIP code at diagnosis Valid Illinois ZIP codes sex code 1 male 2 female cancer site group (based on cancer groups at county level-see above) 1 oral cavity & pharnyx (1) 2 colorectal (4) 3 lung & bronchus (7) 4 breast-invasive female (10 for females only) 5 cervix (11) 6 prostate (14) 7 urinary system (16,17) 8 central nervous system (18) 9 leukemias and lymphomas(19,20,22) 10 all other cancers (2,3,5,6,8,9,12,13,15,21, and 23 (10 for males only) 11 breast-insitu female (24 for females only) NOTE: due to very small number of cases, male breast insitu cases have been omitted from the file (n=110 for all years combined 1990-2009) age at diagnosis group code 1 0-14 2 15-44 3 45-64 4 65 + stage of disease 0 in situ 1 localized 2 regional 3 distant metastases/systemic disease 9 unknown, unstaged, or unspecified diagnosis year group (5yr grps) 19901994 diagnosed between 1990 and 1994 19951999 diagnosed between 1995 and 1999 20002004 diagnosed between 2000 and 2004 20052009 diagnosed between 2005 and 2009 Note: ZIP code data are 100% complete with 99.9% accuracy. Please note the latitude and longitude provided are to the CENTROID of the ZIP code, not to a street-level address and are expressed in decimal degrees.Data were geocoded with MapMarker v24 using coordinate system North American Datum of 1983 (NAD83) The following website has a utility available that will convert decimal degrees to degrees, minutes and seconds http://www.fcc.gov/mb/audio/bickel/DDDMMSS-decimal.html latitude to the CENTROID of the ZIP code longitude to the CENTROID of the ZIP code